I finally feel up to posting an update. Scraping up the energy is close to impossible.
Pre-Transplant:
On Sept. 10th, I started a full week of total body radiation. Each round of radiation, lasted 8 minutes...slowly sapping my energy. There were a total of 11 rounds. I could feel the changes in my skin and taste buds.
On Saturday, Sept. 15th, I was admitted to Standford Hospitals E1 Cancer floor. After settling in, round one of of intense chemotherapy began. Sunday was the same.
Monday was a welcomed break...also known as the day that all of the chemo and radiation catch up to you.
Tuesday, Sept. 18 was transplant day! My second birthday. It was actually quite uneventful. It similar to a blood transfusion. It's called Day Zero. It was amazing and I cried. I felt so overwhelmingly thankful to be here,
Wednesday, Sept. 19 (AKA Day +1)
I don't really remember much. But here is what has happened between then and today.
I haven't swallowed anything in at least 8 days. No food. No Drink. I'm on IV Nutrition.
My mouth, throat, and entire digestive system is incredibly full of ulcers and sores. (making me look like a chipmunk with swollen cheeks!) My body has no way to heal them or fight them off...we are waiting for my new immune system begin to grow. They say any day now. I average about 2 blood or platelet transfusions a day.....so thank you to those that donate blood! I've been in isolation, there's been a lot of throwing up, and going to the bathroom. It's ALOT of IV liquids. At least I know my kidney and bladder are working. My hair has officially fallen out and I am exhausted everyday.
But today is Oct. 2. I excited to have made it to October. Today is Day +14.
We are all so glad you are here. :) Health is on its way!!!
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